pictured above: Tyler Huneault and Lucas Rossi
TYLER’S 9th ANNUAL GARAGE SALE
All proceeds to benefit
“SIALIDOSIS Research” at McMaster University
WHEN: Saturday, May 8, 2010 (* rain or shine)
TIME: 8 a.m. - 2 p.m.
Where: 1407 McMahon , corner of Albion
Tyler is an 11-year old Ottawa boy. As a baby, he was diagnosed with an extremely rare genetic disorder called SIALIDOSIS. In fact, he is the only known child living with this disorder in North America. The simple explanation of it is that Tyler's body does not produce a certain enzyme, which breaks down and disposes of waste nutrients. As a result, those nutrients are being stored in his body’s cells, and are now causing the functions of Tyler's major organs and bone marrow to deteriorate. SIALIDOSIS is a fatal disorder as there is no known cure. Most children affected within the same family of genetic disorders have life spans ranging from infancy to mid-teens. With that being said, enzyme replacement research for SIALIDOSIS is being conducted at McMaster University. While it is fortunate that SIALIDOSIS is so incredibly rare, this also means extremely limited funding for any research, and very little focus on the disorder. For this reason, we strive to raise funds to assist with SIALIDOSIS research at McMaster University through our Annual Garage Sale.
WAYS THAT YOU CAN HELP:
1. Donate items to sell.. Items may be dropped off at our home. If you have an item that is of high value that you would like to sell, but don’t want to donate all of the proceeds, a partial donation would also be greatly appreciated. If it doesn’t sell, it will be returned to you. Heavy items like appliances can also be sold, however we are unable to pick up or deliver them for you. We would be happy to display them on a photo table with the price and contact information. (Baby safety items like cribs and car seats cannot be resold because of by-laws for safety regulations)
2. Make a financial donation. Cheques should be addressed to McMaster University , and indicate Sialidosis Research Fund in the memo line of the cheque. Income tax receipts will be issued by McMaster University .
3. Volunteer to help at the Garage Sale. Even a couple of hours would be greatly appreciated!
4. Hold a garage sale, then donate some of your proceeds to McMaster Univ.
*** If you can help, please contact Giovanni at (613)2201534,
or by Email at giovannipublicist#yahoo.ca***
Thank you for your generosity!
